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Mini Mermaids in the news: 2011

 

Campfire Stories

Santa Cruz difference-makers gear up to speak at the first annual Bonfire Heights event in Monterey

Ten years ago, at age 31, Heidi Boynton was the picture of health and happiness. She was a busy stay-at- home mom with two boys, ages 6 and 9, who was involved in the community, helped organize service trips to Mexico, and camped, biked and jogged regularly.

Today, Boynton is still doing all of those things—and much more—but all whilst living with an incurable, rare “Molotov cocktail” of blood disorders. She was diagnosed with myelodysplastic syndrome (MDS) and aplastic anemia in 2002, when she was 31, and then with paroxysmal nocturnal hemoglobinuria (PNH) in 2008. “I used to think that you’d get this one thing, and then you’d be done,” says Boynton. “But it doesn’t seem to be the case—and that’s all right.” On top of these blood disorders, she also had skin cancer twice and ovarian cancer during the last 10 years. (more)

 

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